Okay....
Dad called this morning and said he thinks mom should stay until Sunday! A new Mercy
Wyatt's diaper rash looks better...not quite as purple more just red! A new mercy
Doc has taken Wyatt off of the nebulizer treatments b/c he isn't wheezing and his lungs sound pretty good. He says that while the treatments help open the airways they can sometimes actually mess w/ the blood flow which would affect the O2 levels. A new mercy
Wyatt is sleeping on a 1/2 liter and maintaining a 98% O2 level. A new mercy
New Mercies are an amazing thing!
Wednesday, December 31, 2008
Keeping the Vigil
That's what my mom calls it...keeping the vigil. So it is 5:27am and Wyatt is finally asleep. For those of you Baby Wisers out there this is very hard for me. I am used to letting a baby cry it out and not have sleep aides, like rocking to sleep, a passy, holding him...actually before he got sick Wyatt wasn't crying at all at night anymore - we would nurse and he would sleep sometimes up to 5 hours...then here we are at the hotel Childrens' and when my kids are sick I know it is a different game and I don't let them cry it out. Sooooooo he slept from the 9pm feeding to 12:30 when the RT came in for treatment, I nursed at 1am...and put him down to sleep....and here we are at 5:30am and he is finally sleeping - after one more feeding at 4 am and another RT treatment at 5 am...he had been on 1/2 a liter of O2 all night (I am sure only b/c he wasn't asleep) and I was right b/c as soon as he fell asleep a few min ago he began to go down in his numbers, alarms began sounding so I went and got the nurse and we've just turned his O2 back up to 1 liter.
Oh Lord for a turning point ... his bottom, his O2 levels....something.
Sometimes it is hard to not imagine that it is something much worse that is keeping us here. The doc assures me it isn't...it just flat out (everyone with me now) "TAKES TIME".
Because he is actually sleeping I should be too. More later as I know it.
Oh Lord for a turning point ... his bottom, his O2 levels....something.
Sometimes it is hard to not imagine that it is something much worse that is keeping us here. The doc assures me it isn't...it just flat out (everyone with me now) "TAKES TIME".
Because he is actually sleeping I should be too. More later as I know it.
Tuesday, December 30, 2008
Today
Quick update:
Wyatt still on 1 liter of O2. Did a chest xray and it is completely clear (thank you Jesus). However, they did discover that he has a fracture in his clavical...I mean really....this happened during birth but no one had detected it until the xray today...is this hilarious that there is yet another thing??? Doc says it'll heal fast and he probably isn't in pain from it...wow!
He's got O2 blowing on his toosh as we speak...it's not worse...that is good. Doc said again today "It just takes time" I told him I was tired of hearing that...we both chuckled.
That's it for now.
Mom leaves Thursday at the crack of dawn. My heart is aching w/ her leaving. We didn't get to do all the stuff we were gonna do together. I had stuff to learn from her about doing "two"...but she did say yesterday that if there is a light from this...she said she truly feels like she "knows" Caroline. I am thankful for that b/c Caroline is worth knowing...and vice versa...mom is worth knowing too.
More later.
Wyatt still on 1 liter of O2. Did a chest xray and it is completely clear (thank you Jesus). However, they did discover that he has a fracture in his clavical...I mean really....this happened during birth but no one had detected it until the xray today...is this hilarious that there is yet another thing??? Doc says it'll heal fast and he probably isn't in pain from it...wow!
He's got O2 blowing on his toosh as we speak...it's not worse...that is good. Doc said again today "It just takes time" I told him I was tired of hearing that...we both chuckled.
That's it for now.
Mom leaves Thursday at the crack of dawn. My heart is aching w/ her leaving. We didn't get to do all the stuff we were gonna do together. I had stuff to learn from her about doing "two"...but she did say yesterday that if there is a light from this...she said she truly feels like she "knows" Caroline. I am thankful for that b/c Caroline is worth knowing...and vice versa...mom is worth knowing too.
More later.
The Dark
Night time does funny things to the mind. The dark always feels more lonely, scary, daunting...tonight no different.
Let's recap first that I finally did go to the urgent care place and indeed got me a Z-Pack! Woo hoo! So thankful for some drugs. Praying that it doesn't affect my milk supply too much. Yesterday was a very hopeful day for me. Wyatt seemed to be improving...he did a 1/2 liter of O2 all day and I was pumped about drugs. Then Jason left and things for me always seem a little harder once he leaves.
The diaper changes - oh his poor little bottom. And honestly, I don't know what more we can do to help heal it...I guess that is another thing that just takes time...
The RT came in (respiratory therapist) and as he listened to Wyatt's lungs he said that the top part of them sound real good and clear...but the bottom of his lungs were still too wet. He saw that WCH was still on a 1/2 liter and he got a little fiesty (which i like) that after 6 days he shouldn't need that much O2. So he did his deal at 9pm and said that he wanted to try a different kind of treatment and would call the doc to get it approved and we would go from there. Doc approved it. It is just a more aggressive approach to getting all the mucus out. First deep suction (tube going down his hose through nasal passage to back of throat) and they suck out gunk...then the new breathing treatment is a mask that is held onto his face and it actually uses more pressure and forces the medicine and air into the lungs. The hope is that this will force the lower part of his lungs to force out the mucus down there. I HATE WATCHING THIS BEING DONE! I hold his little arms down and try to hold his head in place while he is screaming his head off. I told Jason last night on the phone that this is so hard b/c I know he needs it...yet I also feel this pull to be his "voice" and what if I just need to say one time "ok that's enough"...Wyatt doesn't have a voice...that's my responsibility. Oh for wisdom!
In addition to that Wyatt is back up to 1 liter of O2 tonight..he just can't seem to maintain the lower levels when he is sleeping.
I am thankful that he seems to continue to nurse well...and when he doesn't have a dirty diaper he sleeps well.
I am anxious for the sun to rise. Remembering that again His mercies are new every morning and we will attack our 7th day in the hospital as best we can.
Let's recap first that I finally did go to the urgent care place and indeed got me a Z-Pack! Woo hoo! So thankful for some drugs. Praying that it doesn't affect my milk supply too much. Yesterday was a very hopeful day for me. Wyatt seemed to be improving...he did a 1/2 liter of O2 all day and I was pumped about drugs. Then Jason left and things for me always seem a little harder once he leaves.
The diaper changes - oh his poor little bottom. And honestly, I don't know what more we can do to help heal it...I guess that is another thing that just takes time...
The RT came in (respiratory therapist) and as he listened to Wyatt's lungs he said that the top part of them sound real good and clear...but the bottom of his lungs were still too wet. He saw that WCH was still on a 1/2 liter and he got a little fiesty (which i like) that after 6 days he shouldn't need that much O2. So he did his deal at 9pm and said that he wanted to try a different kind of treatment and would call the doc to get it approved and we would go from there. Doc approved it. It is just a more aggressive approach to getting all the mucus out. First deep suction (tube going down his hose through nasal passage to back of throat) and they suck out gunk...then the new breathing treatment is a mask that is held onto his face and it actually uses more pressure and forces the medicine and air into the lungs. The hope is that this will force the lower part of his lungs to force out the mucus down there. I HATE WATCHING THIS BEING DONE! I hold his little arms down and try to hold his head in place while he is screaming his head off. I told Jason last night on the phone that this is so hard b/c I know he needs it...yet I also feel this pull to be his "voice" and what if I just need to say one time "ok that's enough"...Wyatt doesn't have a voice...that's my responsibility. Oh for wisdom!
In addition to that Wyatt is back up to 1 liter of O2 tonight..he just can't seem to maintain the lower levels when he is sleeping.
I am thankful that he seems to continue to nurse well...and when he doesn't have a dirty diaper he sleeps well.
I am anxious for the sun to rise. Remembering that again His mercies are new every morning and we will attack our 7th day in the hospital as best we can.
Monday, December 29, 2008
Time keeps on ticking...
Here's the latest folks.
Last night began looking like it'd be a long one. Mom stayed w/ me while Jason went home to spend the evening w/ Caroline and bathe and put her to bed! Sooooo good for them both. Mom was here w/ me and that was good for my heart. I mean...mom has been here since the 4th and I have been in the hospital 13 of those days! She leaves on Thursday this week...I would love to be home at least by Wed night so we can all be home one night together before she leaves. I miss kicking her butt in the card game spit...a ritual when we get together.
So Wyatt - he stayed on 1 liter of O2 through the night - we are giving him little "sitz" baths for his bottom - we are putting O2 on his bottom several times a day - a yet another cream...silvadine (sp) is what we are going for now. Wyatt was pretty restless until about 3 am b/c of diapers, treatments, vitals etc. But then he calmed and slept until 6am. That means he fed at 12:30am and went all the way to 6 am for the next feeding...that's 5.5 hours folks! In the midst of all of this..that is honestly pretty impressive.
This morning I looked at him and said ok bud we're going to have a good day today. I am going to try not to cry as much, and you do the same. The doc came in and said he's looking good but just know that "this takes time"...I don't know how many times we've heard that...but it's the truth. We are on about day 8 or 9 of him having symptoms... we are in day 6 in the hospital...doc said it can take around 10 days to run it's course. Currently Wyatt is on 1/2 liter of O2...that is an improvement. I pray he can maintain this throughout the day and more importantly throughout the night.
In regards to me...my symptoms are not improving. I am thinking that I have either a sinus infection or sadly the same thing as Wyatt - RSV. Adults can get it too and it is just a BAD cold...but like w/ him there will be no treatment possible...just has to run it's course. I am going to try to sneak to an urgent care facility in between feedings this afternoon and maybe get some drugs to knock this out. When have you ever hoped for a sinus infection...I am today b/c that'll mean I can get some drugs.
The docs have also told us that once we get home they are recommending that we don't venture out for at least a month...and that we are careful about people coming over as well. So just know that we will probably be ultra conservative w/ who we see, when we see you, where we see you...etc. Please don't take anything personally.
Thank you so much for your prayers. The Lords mercies are new every morning. When I sing these words to Wyatt I tear up every time. We all know these words since we were little...but somehow singing them to him makes all the more sense.
" Jesus loves me this I know. For the bible tells me so. Little ones to Him belong. They are weak, but He is strong. Yes, Jesus loves me. Yes, Jesus loves me. Yes, Jesus loves me. The bible tells me so."
I am thankful that is truth. More as we know it.
Last night began looking like it'd be a long one. Mom stayed w/ me while Jason went home to spend the evening w/ Caroline and bathe and put her to bed! Sooooo good for them both. Mom was here w/ me and that was good for my heart. I mean...mom has been here since the 4th and I have been in the hospital 13 of those days! She leaves on Thursday this week...I would love to be home at least by Wed night so we can all be home one night together before she leaves. I miss kicking her butt in the card game spit...a ritual when we get together.
So Wyatt - he stayed on 1 liter of O2 through the night - we are giving him little "sitz" baths for his bottom - we are putting O2 on his bottom several times a day - a yet another cream...silvadine (sp) is what we are going for now. Wyatt was pretty restless until about 3 am b/c of diapers, treatments, vitals etc. But then he calmed and slept until 6am. That means he fed at 12:30am and went all the way to 6 am for the next feeding...that's 5.5 hours folks! In the midst of all of this..that is honestly pretty impressive.
This morning I looked at him and said ok bud we're going to have a good day today. I am going to try not to cry as much, and you do the same. The doc came in and said he's looking good but just know that "this takes time"...I don't know how many times we've heard that...but it's the truth. We are on about day 8 or 9 of him having symptoms... we are in day 6 in the hospital...doc said it can take around 10 days to run it's course. Currently Wyatt is on 1/2 liter of O2...that is an improvement. I pray he can maintain this throughout the day and more importantly throughout the night.
In regards to me...my symptoms are not improving. I am thinking that I have either a sinus infection or sadly the same thing as Wyatt - RSV. Adults can get it too and it is just a BAD cold...but like w/ him there will be no treatment possible...just has to run it's course. I am going to try to sneak to an urgent care facility in between feedings this afternoon and maybe get some drugs to knock this out. When have you ever hoped for a sinus infection...I am today b/c that'll mean I can get some drugs.
The docs have also told us that once we get home they are recommending that we don't venture out for at least a month...and that we are careful about people coming over as well. So just know that we will probably be ultra conservative w/ who we see, when we see you, where we see you...etc. Please don't take anything personally.
Thank you so much for your prayers. The Lords mercies are new every morning. When I sing these words to Wyatt I tear up every time. We all know these words since we were little...but somehow singing them to him makes all the more sense.
" Jesus loves me this I know. For the bible tells me so. Little ones to Him belong. They are weak, but He is strong. Yes, Jesus loves me. Yes, Jesus loves me. Yes, Jesus loves me. The bible tells me so."
I am thankful that is truth. More as we know it.
Sunday, December 28, 2008
Today
Last night Wyatt and I both got some good sleep. Thankful for that. However, today has been a hard day. He seems to be in so much pain from his bad diaper rash that it affects how he breathes. So he is bouncing around on 1 liter to a 1/2 liter of O2...can't quite find the way to soothe him. We let him air out while holding an oxygen mask to his toosh (oxygen is a healing agent) but then he pees and that stings his bottom and he freaks out which then causes the cycle to start again. So I believe that if we can get his bottom healed his breathing would improve.
Jason kicked me out w/ my mom this afternoon. Mom and I went to lunch, and then bought some new slippers. I am thankful for the fresh air...but then so glad to be back w/ Wyatt. It breaks my heart to hear him cry. Like he is right now. It's everything from the tape on his face that is irritating, to the rash on his bottom that anytime he goes he cries in pain...to the suction treatment...the only thing that he doesn't cry at is feeding...and when he can fall asleep that...
So pray that his diaper rash really heals. And that our little guy can continue to make it on 1/2 liter O2.
I am so thankful for the nurses and my constant "hey can we try this" suggestions.
Thank you for praying.
Jason kicked me out w/ my mom this afternoon. Mom and I went to lunch, and then bought some new slippers. I am thankful for the fresh air...but then so glad to be back w/ Wyatt. It breaks my heart to hear him cry. Like he is right now. It's everything from the tape on his face that is irritating, to the rash on his bottom that anytime he goes he cries in pain...to the suction treatment...the only thing that he doesn't cry at is feeding...and when he can fall asleep that...
So pray that his diaper rash really heals. And that our little guy can continue to make it on 1/2 liter O2.
I am so thankful for the nurses and my constant "hey can we try this" suggestions.
Thank you for praying.
Saturday, December 27, 2008
All Things New
Last night I actually got about 2 different 2.5 hr stretches of sleep! Woo hoo! Wyatt went 4 hours, but after nursing he would then have his breathing treatment and suction and so we'd end up being up about 1.5 hrs...he did well for the most part. Sometimes, it was hard for him to settle back in and go to sleep. The poor little guy also has a killer diaper rash that we can't seem to get rid of. I promise you we are trying everything - even down to naked time w/ the oxygen mask blowing on his toosh. Now we are doing what we did w/ Caroline and have switched him to chlorine free diapers hoping that will make as much of a difference w/ him as it did with her.
This morning when Caroline arrived, my mom stayed w/ Wyatt and we took Caroline over to Perimeter Mall for a little adventure. It was good for me to leave the hospital and have some time w/ the boo! She made her first trip into Claire's and we got some oh so gorgeous necklaces!
Wyatt is about the same today. This process is really a slow one. The doc told us yesterday that it is a "2 steps forward 1 step back" kind of a deal. I feel like yesterday was a bit of a one step back day...today feels the same. He is actually on .5 liter of Oxygen. I am hopeful he can drop to 1/4 liter sometime today and then tomorrow totally come off the oxygen.
I appreciate everyone's concerns w/ how I am doing. I feel like I am getting rest and honestly that the Lord is sustaining me. Providing endurance when at 2am I just don't think I can sing another refrain of Amazing Grace. But then somehow I find myself 4 more songs into the list trying to soothe Wyatt.
Here are the prayers I feel like we have for today: go to 1/4 liter Oxygen, cleared up diaper rash, my cold to go away
Thank you so much! More later as we know it.
This morning when Caroline arrived, my mom stayed w/ Wyatt and we took Caroline over to Perimeter Mall for a little adventure. It was good for me to leave the hospital and have some time w/ the boo! She made her first trip into Claire's and we got some oh so gorgeous necklaces!
Wyatt is about the same today. This process is really a slow one. The doc told us yesterday that it is a "2 steps forward 1 step back" kind of a deal. I feel like yesterday was a bit of a one step back day...today feels the same. He is actually on .5 liter of Oxygen. I am hopeful he can drop to 1/4 liter sometime today and then tomorrow totally come off the oxygen.
I appreciate everyone's concerns w/ how I am doing. I feel like I am getting rest and honestly that the Lord is sustaining me. Providing endurance when at 2am I just don't think I can sing another refrain of Amazing Grace. But then somehow I find myself 4 more songs into the list trying to soothe Wyatt.
Here are the prayers I feel like we have for today: go to 1/4 liter Oxygen, cleared up diaper rash, my cold to go away
Thank you so much! More later as we know it.
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